Dear Doctor God,

As You already know, my name is Nikki and I am a 25 year old woman who was born with a very rare condition called Alagille Syndrome. Alagille Syndrome is an illness that affects the liver, the heart, the bones, the eyes, the ears and the person’s growth. In my case, I’ve had a liver transplant, a heart catheter surgery, liver biopsies, double jaw surgery and now, possibly, I may have to go for one or two hip replacements, due to Osteoporosis, or AVN (Avascular Necrosis).

Currently, I am seeing someone for my heart condition (Pulmonary Stenosis), and a team of people for my liver, which is a life-long thing. I am also seeing someone for my ears and for my eyes. This is also a long term thing. Some short term treatments I am currently receiving is for my teeth and jaw. Also, because of my corrective jaw surgery (Bimaxillary Osteotomy) in 2017, I came down with an infection. So now I am receiving extra care for my infection, which included the removal of the right mandibular plate (and screws), and a small piece of infected bone that was sent for a histopathology investigation.

Recently, I was admitted to the hospital for a fractured hip, caused by steroids that was prescribed to me many years ago. Also, because of my sickness, by nature my bones are generally weaker and more fragile. Therefore, both left and right hips are fractured. But the side that is most problematic is the right side. Due to this I am now referred to receiving long term care for my hips.

With such a long, comprehensive and complicated health history that affects the present. I do not know what the future holds. I do not know what to expect. I don’t know what will come next. What is the problem? Which treatment will help? How can I fix the problem? What about side effects? What about complications? ………………..?

But then I realise something now. Now I know and now I have learned that I should have done this a long time ago. I should have officially given You my files, with all my health records in it, to You, Doctor. I should have done it a long time ago but its still not too late. Today, the first of September 2018, I officially give You full permission to handle my medical needs. I give You complete authority over all my health conditions. So be my Doctor. Be my Doctor at my next doctor’s appointment. Be my Doctor that will specialise in every organ, tissue and cell in my body. You are the Doctor I trust. You are the Doctor I am not afraid of. You are the Doctor I need. You are my Doctor, God.

Jesus said to them, “It is not the healthy who need a doctor, but the sick.” -Mark 2:17

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